If you are reading this then I have left this beautiful world and gone to a better place. At least I hope so or that second career as a vicar was seriously misguided.... 😉

I am so grateful to all of you who I have crossed paths with, in different places at different times, old friends and new. Thank you for the connection, the conversation, the love and the laughter.

The cruelty of Motor Neurone Disease is that it takes away the ability to do the basic things that so many of us take for granted. So if I can request one thing it would be this – eat the food you love, walk in the woods, sing loudly, hold your loved ones close and tell them how much they mean to you.

J.R.R Tolkien said, "All we have to decide is what to do with the time that is given us."

So choose wisely, and above all else choose love.

Until we meet again, John ♡


Dad passed away on Saturday, just six months after he was diagnosed with Motor Neurone Disease. He was strong until the very end. Despite no longer being able to speak, his sense of humour was still apparent from his smile and twinkly eyes. We are heartbroken that he is gone but glad he is finally at peace. We will be raising money for the Motor Neurone Disease Association in his memory and have set up this tribute fund where you can join us in making a donation or simply sharing your photos and memories with us.

We will share funeral details shortly for those who wish to join us in celebrating the amazing man he was and will forever be in our hearts.

Sarah and Jen xxx